This month, I have had the privilege of playing Neil in a community theater production of The Quality of Life, a beautifully-written, award-winning play by Jane Anderson. Neil and his wife Jeanette are living in a yurt on their property in the Berkeley Hills in Northern California after losing their house in a wild fire. Neil has cancer, and his options for treatment have run out. “Rather than suffer the kind of prolonged, humiliating and painful death that is common with this disease, he has chosen to take the more humane and dignified path of self-release.” As he says, he is “checking out before the machine starts to crash.”
The play looks at how we perceive death, grief and faith. At its heart, the play is about finding comfort and hope in the face of great loss. It is a story told with humor, compassion, pain and, above all, love. In the process of becoming Neil, I have seen that the quality of life includes grief and that grief is what makes life dear. I put myself in the shoes of a dying man, which is, of course, where I had been all along.
What is Neil’s ethical will? The concept has Biblical roots, but an ethical will may generally be described as an expression of values to be passed down from one generation to the next. Scattered through The Quality of Life, like the treasures they found in the ashes of their home, are clues that reveal Neil’s set of values and that shape his ethical will.
Neil and Jeanette are spiritual, but they are “not part of any organized religion.” Their moral guidance comes not from the Ten Commandments but from “common decency.”
Neil understands the validity of religious beliefs, but he does not believe in damnation. He does not need faith-based rules or dogma to show him what’s right and what’s wrong. It is enough for Neil to know his own heart and to know what is true.
Common decency makes kindness a virtue. Neil believes that it is important to be kind and to be thankful for the kindness of others. He believes that he has a responsibility to try to set things right whenever he finds that he has wronged another with an unkind word.
Though there is pain, there is also beauty in life. Neil delights in that beauty and expresses his joy in the gift that beauty brings. I have imagined Neil’s last words:
Your eyes are kind and your heart is generous. You have been through an unspeakable horror in your life, yet still you see the beauty of a circling hawk and the promise contained in an avocado seed. I celebrate that joy with you, for there is beauty and hopefulness in life. You only have to look for it. People move on, and I wish I knew how to take away the ache. Take care of yourself.
Neil is interested in other points of view. Though he may disagree, he is respectful of the beliefs of others. He pays attention to how his words and actions may affect other people. He is always seeking to find common truth.
We haven’t always seen eye-to-eye, but I like hearing from the other side! I admire your strong faith and your strong heart. I know that you are not made of stone. In the end, you and I are not so different. Everywhere you look, there is heartbreak, and people move on. But you build things. You hammer in the nails, and you fill the bird feeder. You reach out your hand. I have faith that you will work it out. Life is too precious.
Neil and Jeanette toast to having “no fear” of death. His approaching death is not awful, Neil says. “We all have to die. Presidents do it, garbage men do it, lawyers and poets and certified public accountants do it.” He has chosen to end his journey, and he is thankful that he gets to design his own end and that he will die gently with his beloved Jeanette by his side. He wants to “cherish his very last breath” and sees this as “nothing but a privilege and a gift.” He says that he is not afraid of death, and yet he recognizes in himself the “terror and rage that normal people feel.” Life does not let you cheat grief.
Still, Neil loves life, and he refuses to let death make him morbid or morose. He allows himself to be playful, and at times, his personality merges with the archetypal trickster.
In the face of the loss of his own life, leaving everyone and everything he has ever known, Neil finds comfort in Jeanette with every beat of her heart. It is the love between them that he values more than anything else.
I have loved you from that moment when, standing on a boulder in Mexico, I looked down at you and I saw your smile and our eyes met. Your spirit of wild unbounded joy has kept me going through all the years. And now, I don’t want to leave you, but people move on. Though my heart breaks as we share our last goodbye, my mind finds peace in a heartbeat. Please know that this less than perfect man loved you. No fear!
Unlike Neil, I do not have cancer. I am not confronted by a terminal disease with no hope of cure. I have not been put in the position of having to make decisions about the end of my journey, but I know that there will be an end. There is wisdom in Neil’s ethical will that resonates in me like a wind chime and that merges in my soul, in my “star stuff,” because I have become Neil.
Some other stuff for later,
- 85The English version of this post—Becoming Neil—was posted here on March 29, 2016. This Spanish translation is my own and may contain errors. I invite native speakers of the language to comment on my errors and to suggest corrections. Aquí está una traducción en español de Becoming Neil. Me gustaría…
- 79“But our machines have now been running seventy or eighty years, and we must expect that, worn as they are, here a pivot, there a wheel, now a pinion, next a spring, will be giving way; and however we may tinker them up for a while, all will at length…
- 62Three years into exile, and I knew that I would become “old” soon enough. Maybe I was already. I hoped to be one of those people who enjoyed good health and a sharp mind right up until the end, but for many people, some sort of affliction came with the…